Read the paper at https://academic.oup.com/ndt/advance-article/doi/10.1093/ndt/gfab252/63…
A snapshot of European registries on Chronic Kidney Disease patients not on Kidney Replacement Therapy
We report the current status of CKD registries in Europe in relation to their data collection on patients not on KRT so that in the future we may investigate to what extent also their data may be used for similar purposes, like collaborative research on CKD trajectories and patient outcomes.
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7 Sep 2021 | News
The role of kidney registries in expediting large-scale collection of patient-reported outcome measures for people with chronic kidney disease
In this editorial, we discuss the current state-of-play of PROMs collection by kidney registries and provide an overview of what is (un)known about the feasibility and effectivenes...
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Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registrat...
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The revised version 2018 of the nationwide web-based registry system for kidney diseases in Japan: Japan Renal Biopsy Registry and Japan Kidney Disease Registry
The Japan Renal Biopsy Registry (J-RBR), the first nation-wide registry of renal biopsies in Japan, was established in 2007, and expanded to include non-biopsy cases as the Japan K...