Read the paper at https://academic.oup.com/ckj/article/14/6/1495/6173985
The role of kidney registries in expediting large-scale collection of patient-reported outcome measures for people with chronic kidney disease
In this editorial, we discuss the current state-of-play of PROMs collection by kidney registries and provide an overview of what is (un)known about the feasibility and effectiveness of PROMs in CKD and other conditions.