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United States Pulmonary Hypertension Scientific Registry (USPHSR): rationale, design, and clinical implications

Published 20 June 2019

Diagnostic World Health Organization (WHO) Group 1 pulmonary arterial hypertension (PAH) and Diagnostic Group 1' pulmonary veno-occlusive disease (PVOD) and/or pulmonary capillary hemangiomatosis (PCH) are progressive and fatal disorders. Past registries provided important insights into these disorders, but did not include hormonal exposures or genomic data.

New publication in Sage Journals.

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Last updated: 25 Jan 2021 | anna_e [dot] larsson [at] med [dot] lu [dot] se