Twin registers

• Establishing a Twin Register: An Invaluable Resource for (Behavior) Genetic, Epidemiological, Biomarker, and 'Omics' Studies
• Recruitment and attrition in twin register studies of childhood behavior: the example of the Australian Twin ADHD Project
• Development of computerized storage facilities for twin data: a relational database system for a twin register

Australia

• Australian Twin Registry: 30 years of progress (Twin Res Hum Genet. 2013 Feb;16(1):34-42)
• The Australian Twin Registry as a resource for genetic studies into ophthalmic traits (Twin Res Hum Genet. 2013 Feb;16(1):52-7.)
• The introduction of the Australian twin registry (in Chinese) (Zhonghua Liu Xing Bing Xue Za Zhi. 2010 Jun;3(6):700-2)
• Australian Twin Registry: a nationally funded resource for medical and scientific research, incorporating match and WATCH (Twin Res Hum Genet. 2006 Dec;9(6):707-11.)
• The Australian Twin Registry (Twin Res. 2002 Oct;5(5):329-36.)
   
• Australian NHMRC Twin Registry: a resource for pediatric research (Pediatr Cardiol. 1995 Mar-Apr;16(2):100.)
• The Australian NHMRC Twin Registry. A resource for the Australian scientific community (Med J Aust. 1986 Jul 21;145(2):63-5.)
• Australian N.H. & M.R.C. Twin Registry (Aust N Z J Med. 1982 Feb;12(1):97.)
• Australian NHMRC twin registry (Med J Aust. 1981 Nov 14;2(10):518.)
   
• The Western Australian Twin Register: a population-based register of adult and child multiples (Twin Res Hum Genet. 2008 Dec;9(6):712-7.)

Brazil

• The Brazilian Twin Registry (Twin Res Hum Genet. 2016 Dec;19(6):687-691.)
• Brazilian Twin Registry: A Bright Future for Twin Studies/Twin Research (Twin Res Hum Genet. 2016 Jun;19(3):292-6.)

Chile

• Chilean school-age children twin registry: planning, sampling and implications (Twin Res Hum Genet. 2006 Dec;9(6):743-6.)

China

• The Chinese National Twin Registry: A Unique Data Source for Systems Epidemiology of Complex Disease (Twin Res hum Genet. 2019 Dec;22(6):482-485.)
• The Chinese National Twin Registry: a 'gold mine' for scientific research (J Intern Med. 2019 Sep;286(3):299-308.)
• The Chinese National Twin Registry: an update (Twin Res hum Genet. 2013 Feb;16(1):86-90.)
• Current status of the Chinese National Twin Registry (Twin Res Hum Genet. 2006 Dec;9(6):747-52.)
• Chinese National Twin Registry as a resource for genetic epidemiologic studies of common and complex diseases in China (Twin Res. 2002 Oct;5(5):347-51.)
• The Qingdao Twin Registry: a status update (Twin Res hum Genet. 2013 Feb;16(1):79-85.)
• The Qingdao Twin Registry: a focus on chronic disease research (Twin Res Hum Genet. 2006 Dec;9(6):758-62.)
• A Prospective Twin Registry in Southwestern China (TRiSC): exploring the effects of genetic and environmental factors on cognitive and behavioral development and mental health wellbeing in children and adolescents (Twin Res Hum Genet. 2009 Jun;12839:312-9.)

Cuba

• The Cuban Twin Registry: initial findings and perspectives (Twin Res Hum Genet. 2013 Feb;16(19:98-103.)
• I. 'Street of twins': multiple births in Cuba II. The Cuban twin registry: an update (Twin Res Hum Genet. 2014 Aug;17(4):347-53.)

Denmark

• The Danish Twin Registry: An Updated Overview (Twin Res Hum Genet. 2019 Dec;22(6):499-507.)
• The Danish Twin Registry: linking surveys, national registers, and biological information (Twin Res Hum Genet. 2013 Feb;16(1):104-11.)
• The Danish Twin Registry (Scand J Public Health. 2011 Jul;39(7 Suppl):75-8.)
• The Danish Twin Registry in the new millennium (Twin Res Hum Genet. 2006 Dec;9(6):763-71.)
• The danish twin registry: past and present (Twin Res. 2004 Aug;7(4):318-35.)
• The Danish Twin Registry: 127 birth cohorts of twins (Twin Res. 2002 Oct;5(5):352-7.)
• The early history of the Danish twin registry (in Danish) (Dan Medicinhist Arbog. 1999:81-106.)
• Coding of occupation for the "young cohort" of the Danish twin register. A resource for future epidemiologic research (Scand J Public Health 1999 Jun;27(2):148-51.)
• The Danish Twin Register (1996) (Dan Med Bull. 1996 Dec;43(5):467-70.)
• The most recent part of the Danish Twin Registry. Establilshment and analysis of zygote specific twinning rates (in Danish) (Ugeskr Laeger. 1996 Jun 10;158(24):3456-60.)
• The new Danish Twin Register: establishment and analysis of twinning rates (Int J Epidemiol. 1995 Jun;24(2):589-96.)
• The Danish twin register (1968) (Acta Genet MEd Gemellol (Roma). 1968 Apr;17(2):315-32.)

Finland

• The Finnish Twin Registry: formation and compilation, questionnaire study, zygosity determination procedures, and research program (Prog Clin Biol Res. 1978;24 Pt B:179-84.)

Germany

• HealthTwiSt: the Berlin Twin Registry for health research (Twin Res Hum Genet. 2013 Feb;16(1):163-6.)
• HealthTwiSt: the Berlin Twin Registry (Twin Res Hum Genet. 2006 Dec;9(6):778-82.
• The Jena Twin Registry and the Jena Twin Study of Social Attitudes (JeTSSA) (Twin Res Hum Genet. 206 Dec;9(6):783-6)

Guinea-Bissau

• The Guinea-Bissau Twin Registry Update: A Platform for Studying Twin Mortality and Metabolic Disease (Twin Res Hum Genet. 2019 Dec;22(6):554-560.)
• Establishing a twin registry in Guinea-Bissau (Twin Res Hum Genet. 2013 Feb;16(1):179-84.)

Hungary

• The Hungarian Twin Registry Update: Turning From a Voluntary to a Population-Based Registry (Twin Res Hum Genet. 2019 Dec;22(6):561-566.)
• The Hungarian Twin Registry (Twin Res Hum Genet. 2013 Feb;16(1):185-9.)
• The first five years of the Budapest twin register, 1970-1974 (Acta Genet Med Gemellol (roma). 1979;28(1):73-6.)
• The Twin Register of Budapest (Acta Genet Med Gemellol (Roma). 1974;22 suppl:219-22.)

Iran

• Isfahan Twins Registry (ITR): An Invaluable Platform for Epidemiological and Epigenetic Studies: Design and Methodology of ITR (Twin Res hum Genet. 2019 Dec;22(6):579-582.)

Italy

• The Italian Twin Registry: An Update at 18 Years From Its Inception (Twin Res hum Genet. 2019 Dec;22(6):572-578.)
• Attitudes and willingness to donate biological samples for research among potential donors in the Italian Twin Register (J Empir Res Hum Res Ethics. 2014 Jul;9(3):39-47.)
• An update on the Italian Twin Register: advances in cohort recruitment, project building and network development (Twin Res hum Genet. 2013 Feb;16(1):190-6.)
• The Italian Twin Register: new cohorts and tools, current projects and future perspectives of a developing resource (Twin Res hum Genet. 2006 Dec;9(6):799-805.)
• Twins in biomedical research and the creation of the "National Twin Registry" (in Italian) (Epidemiol Prev. 2003 Sep-Oct;27(5):297-302.)
• The Italian Twin Project: from the personal identification number to a national twin registry (Twin Res. 2002 Oct;5(5):382-6.)
• Italian population yields world's largest twin registry (Nat Med. 1997 Nov;3(11):1176.)
• An Italian army twin register (Acta Genet Med Gemellol (Roma). 1991;40(3-4):263-7.)

Japan

• Update on Osaka University Twin Registry: An Overview of Multidisciplinary Research Resources and Biobank at Osaka University Center for Twin Research (Twin Res Hum Genet. 2019 Dec;22(6):597-601.)
• The Osaka University Aged Twin Registry: epigenetics and identical twins discordant for aging-dependent diseases (Twin Res Hum Genet. 2006 Dec;9(6):808-10.)
• A gerontological cohort study of aged twins: the Osaka University Aged Twin Registry (Twin Res. 2002 Oct;5(5):387-8.)
• The New West Japan Twins and Higher Order Multiple Births Registry (Twin Res Hum Genet. 2019 Dec;22(6):602-605.)

Malaysia

• Malaysian Twin Registry (Twin Res hum Genet. 2013 Feb;16(1):246-7.)
• National malaysian twin registry - a perfect opportunity for researchers to study nature versus nurture (Malays Fam Physician. 2008 Aug 31;3(2):111-2.)

Mexico

• First Steps of the Mexico Twin Registry (RGMex-MexTR) at the University of Guadalajara (Twin Res Hum Genet. 2019 Dec;22(6):609-610.)

Mongolia

• Resources and pilot results for establishing a Mongolian Twin Register (Twin Res Hum Genet. 2013 Feb;16(1):248-51.)

Netherlands

• The Netherlands Twin Register: Longitudinal Research Based on Twin and Twin-Family Designs (Twin Res Hum Genet. 2019 Dec;22(6):623-636.)
• The Netherlands Twin Register biobank: a resource for genetic epidemiological studies (Twin Res Hum Genet. 2010 Jun;13(3):231-45.)
• Netherlands Twin Register: from twins to twin families (Twin Res Hum Genet. 2006 Dec;9(6):849-57.)
• Netherlands Twin Register: a focus on longitudinal research (Twin Res. 2002 Oct;5(5):401-6.)
• The Young Netherlands Twin Register (YNTR): longitudinal twin and family studies in over 70,000 children (Twin Res Hum Genet. 2013 Feb;16(1):252-67.)
• Young Netherlands Twin Register (Y-NTR): a longitudinal multiple informant study of problem behavior (Twin Res Hum Genet. 2007 Feb;10(1):3-11.)
• The Adult Netherlands Twin Register: twenty-five years of survey and biological data collection (Twin Res Hum Genet. 2013 Feb;16(1):271-81.)
• The Dutch Twin Register: growth data on weight and height (Behav Genet. 1992 Mar;22(2):247-51.)

Nigeria

• The Nigerian Twin and Sibling Registry: An Update (Twin Res Hum Genet. 2019 Dec;22(6):637-640.)

Norway

• The Norwegian Twin Registry (Twin Res Hum Genet. 2019 Dec;22(6):647-650.)
• The Norwegian Twin Registry from a public health perspective: a research update (Twin Res Hum Genet. 2013 Feb;16(1):285-95.)
• The Norwegian Twin Registry (2012) (Twin Res Hum Genet. 2012 Dec;15(6):775-80.)

Russia

• The Russian School Twin Registry (RSTR): project PROGRESS (Twin Res Hum Genet. 2013 Feb;16(1):126-33.)

Serbia

• Serbian Twin Registry (Twin Res Hum Genet. 2019 Dec;2286):660-666.)

South Korea

• The South Korean Twin Registry (Twin Res Hum Genet. 2019 Dec;22(6):606-608.)
• The South Korean Twin Registry: an update (Twin Res Hum Genet. 2013 Feb;16(1):237-40.)
• The South Korean Twin Registry (2006) (Twin Res Hum Genet. 2006 Dec; 9(6):838-43.)
• The Korean Twin Registry--methods, current stage, and interim results (Twin Res. 2002 Oct;5(5):394-400.)

Spain

• The Murcia Twin Registry. A resource for research on health-related behaviour (in Spanish) (Gac Sanit. 2018 Jan-Feb;32(1):92-95.)
• An Update of Twin Research in Spain: The Murcia Twin Registry (Twin Res Hum Genet. 2019 Dec;22(6):667-671.)
• The Murcia Twin Registry: a population-based registry of adult multiples in Spain (Twin Res Hum Genet. 2013 Feb;16(1):302-6.)
• An initiative in Spain for the study of women's health: the Murcia Twin Registry (Twin Res Hum Genet. 2006 Dec;9(6):865-7.)

Sri Lanka

• The Sri Lankan Twin Registry: 2012 update (Twin Res Hum Genet. 2013 Feb;16(1):307-12.)
• Update from Sri Lankan Twin Registry: establishment of a population-based twin register and ongoing project on common mental disorders, alcohol abuse and suicidal ideations (Twin Res Hum Genet. 2006 Dec;9(6):868-74.)
• Challenges in recruiting older twins for the Sri Lankan twin registry (Twin Res. 2003 Feb;6(1):67-71.)
• Sri Lankan Twin Registry (Twin Res. 2002 Oct;5(5):424-6.)
• Feasibility of using different approaches for recruiting younger twins to establish a population based twin register in Sri Lanka (Twin Res. 2001 Dec;4(6):459-63.)
• Establishing a twin register in Sri Lanka (Twin Res. 2000 Dec;3(49:202-4.)

Sweden

• The Swedish Twin Registry: Content and Management as a Research Infrastructure (Twin Res Hum Genet. 2019 Dec;22(6):672-680.)
• Validation of screening questions and symptom coherence of night eating in the Swedish Twin Registry (Compr Psychiatry. 2014 Apr;55(3):579-87.)
• The Swedish Twin Registry: establishment of a biobank and other recent developments (Twin Res Hum Genet. 2013 Feb;16(19:317-29.)
• Complete ascertainment of Parkinson disease in the Swedish Twin Registry (Neurobiol Aging. 2008 Dec;29(12):1765-73.)
• The Swedish Twin Registry in the third millennium: an update (Twin Res Hum Genet. 2006 Dec;9(6):875-82)
• Mania in the Swedish Twin Registry: criterion validity and prevalence (Aust N Z J Psychiatry. 2005 Apr;39(4):235-43.)
• Complete ascertainment of dementia in the Swedish Twin Registry: the HARMONY study (Neurobiol Aging. 2005 Apr;26(4):439-47.)
• The Swedish Twin Registry in the third millennium (Twin Res. 2002 Oct;5(5):427-32.)
• The Swedish Twin Registry: a unique resource for clinical, epidemiological and genetic studies (J Intern Med. 2002 Sep;252(3):184-205.)
• The Swedish Twin Registry (Prog Clin Biol Res. 1978;24 pt B: 189-95.)
• A new Swedish twin registry containing environmental and medical base line data from about 14,000 same-sexed pairs born 1926-58 (Acta Med Scand Suppl. 1976,600:1-111.)
• The Swedish twin registry--past and future use (Acta Genet Med Gemellol (Roma). 1970 Jan-Apr;19(19:351-4.)

Thailand

• Thai Twin Registry: description of the initial stage (Twin Res Hum Genet. 2013 Feb;16(1):330-2.)

UK

• TwinsUK: The UK Adult Twin Registry Update (Twin Res Hum Genet. 2019 Dec;)
• The UK Adult Twin Registry (TwinsUK Resource) (Twin Res Genet. 2013 Feb;16(1):144-9.)
• The UK Adult Twin Registry (TwinsUK) (Twin Res Hum Genet. 2006 Dec;9(6):899-906.)
• The St. Thomas' UK Adult Twin Registry (Twin res. 2002 Oct;585):440-3.)

USA

• The feasibility of creating a population-based national twin registry in the United States (Twin Res Hum Genet. 2006 Dec;9(6):919-26.)
• Establishment of the Avera Twin Register in the Midwest USA (Twin Res Hum Genet. 2017 Oct;20(5):414-418.)
• Avera Twin Register Growing Through Online Consenting and Survey Collection (Twin Res Hum Genet. 2019 Dec;22(6):686-690.)
• The Chronic Fatigue Twin Registry: method of construction, composition, and zygosity assignment (Twin Res. 1999 Sep;2(3):203-11.)
• The Colorado Twin Registry: 2019 Update (Twin Res Hum Genet. 2019 Dec;22(6):707-715.)
• Colorado Twin Registry: an update (Twin Res Hum Genet. 2013 Feb;16(1):351-7.)
• Colorado Twin Registry (Twin Res Hum Genet. 2006 Dec;9(6):941-9.)
• The Florida State Twin Registry (Twin Res Hum Genet. 2019 Dec;22(6):728-730.)
• An update on the Florida State Twin Registry (Twin Res Hum Genet. 2013 Feb;16(1):471-5.)
• The Florida State Twin Registry: research aims and design (Twin Res Hum Genet. 2006 Dec;9(6):958-62.)
• The Mid-Atlantic Twin Registry of Virginia Commonwealth University (Twin Res Hum Genet. 2019 Dec;22(6):753-756.)
• The Mid-Atlantic Twin Registry, revisited (Twin Res Hum Genet. 2013 Feb;16(1):424-8.)
• The Mid-Atlantic Twin Registry (Twin Res. 2002 Oct;585):449-55.)
• The Michigan State University Twin Registry (MSUTR): 15 Years of Twin and Family Research (Twin Res Hum Genet. 2019 Dec;22(6):741-745.)
• The Michigan State University Twin Registry (MSUTR): an update (Twin Res Hum Genet. 2013 Feb;16(1):344-50.)
• The Michigan State University Twin Registry (MSUTR): genetic, environmental and neurobiological influences on behavior across development (Twin Res Hum Genet. 2006 Dec;9(6):971-7.)
• The Minnesota Twin Registry: current status and future directions (Twin Res. 2002 Oct;5(5):488-92.)
• Cohort Profile: The National Academy of Sciences-National Research Council Twin Registry (NAS-NRC Twin Registry) (Int J Epidemiol. 2015 Jun;44(3):819-25.)
• The NAS-NRC Twin Registry and Duke Twins Study of Memory in Aging: An Update (Twin Res Hum Genet 2019 Dec;22(6):757-760.)
• Update on the NAS-NRC Twin Registry (Twin Res Hum Genet. 2006 Dec;9(6):985-7.)
• Verification of self-report of zygosity determined via DNA testing in a subset of the NAS-NRC twin registry 40 years later (Twin Res Hum Genet. 2005 Aug;8(4):362-7.)
• The NAS-NRC Twin Registry of WWII military veteran twins. National Academy of Sciences-National Research Council (Twin Res. 2002 Oct;5(5):493-6.)
• NAS-NRC Twin Registry Survey. National Academy of Sciences--National Research Council (Behav Genet. 1997 Jul;27(4):271.)
• NAS-NRC Twin Registry Survey (Alcohol Clin Exp Res. 1997 Apr;21(2):381.)
• NAS-NRC Twin Registry 1995 survey (Am J Med Genet. 1994 Aug 15;52(2):254.)
• The National Academy of Sciences--National Research Council Twin Registry: ten years of operation (Prog Clin Biol Res. 1978;24 Pt B:153-72.)
• The Pennsylvania Longitudinal Study of Parents and Children (PALSPAC) Twin Registry (Twin Res Hum Genet. 2019 Dec;22(6):765-768.)
• The Southern California Twin Register at the University of Southern California: III (Twin Res hum Genet. 2013 Feb;16(1):336-43.)
• The Southern California Twin Register at the University of Southern California: II (Tewin Res Hum Genet. 2006 Dec;9(6):933-40.)
• The Southern California Twin Register at the University of Southern California (Twin Res. 2002 Oct;5(5):456-9.)
• University of Washington Twin Registry: poised for the next generation of twin research (Twin Res Hum Genet. 2013 Feb;16(1):455-62.)
• University of Washington Twin Registry: construction and characteristics of a community-based twin registry (Twin Res Hum Genet. 2006 Dec;9(6):1023-9.)
• Cohort Profile: The Vietnam Era Twin Registry (VET Registry) (Int J Epidemiol. 2019 Nov 21. pii: dyz217.)
• The Vietnam Era Twin Registry: a quarter century of progress (Twin Res Hum Genet. 2013 Feb;16(1):429-36.)
• Determining zygosity in the Vietnam era twin registry: an update (Twin Res Hum Genet. 2010 Oct;13(5):46-4.)
• Genetic studies of pathological gambling: a review of methodology and analyses of data from the Vietnam Era Twin Registry (J Gambl Stud. 2005 Summer;21(2):179-203.)
• The Vietnam Era Twin Registry (Twin Res. 2002 Oct;5(5):476-81.)
• The Vietnam Era Twin Registry: a resource for medical research (Public Health Rep. 1990 Jul-Aug;105(4):368-73.)
• Determining zygosity in the Vietnam Era Twin Registry: an approach using questionnaires (Clin Genet. 1989 Jun;35(6):423-32.)
• The Washington State Twin Registry: 2019 Update (Twin Res Hum Genet. 2019 Dec;22(6):788-793.)